Connecting the Generations

Connecting the Generations
Happy feet...a great investment!

Thursday, June 14, 2012

My Dad: Screwdriver, Typewriter and Road Map

At this time of year, the word Dad typically conjures up portraits of fathers grilling, doing rugged work in the yard or power tooling in the garage.  But I can define my Dad's character and my bond with him, by more meaningful imagery; a screwdriver, a typewriter and a map.
     When I was a young girl growing up in a borough of New York, I was afraid of many things.  I often had nightmares about subway muggers, home burglars and potential predators lurking the city streets.  Perhaps it was because I watched too many network television news programs.  But it was something I did with Dad before dinner.  We sat on the couch, watched the city headlines and discussed how to practice safety.  I was taking the train to junior high school at twelve years old, so I listened intently.
     "Don't make eye contact with strangers.  Always look as if you know exactly where you are going.  Travel in groups," said Dad.
     At night, I watched him close and lock all the windows and doors of our apartment.  He further secured my bedroom window with a screwdriver.  He placed a door jammer under the front and back doors.  It was not so unusual given the break-in our next door neighbors experienced and the fact that our family car had been stolen right in front of our place.  I have carried Dad's safety warnings with me throughout my college years on and off campus, into my twenties as a single working female commuting back and forth over the East River and throughout my thirties as a Mom with little ones to protect.
     Dad inspired me during my elementary school years to learn how to type, to do it well and to use this skill as a way to make a steady income.  He worked in government positions using data entry skills and ultimately honed a career in accounting.  I remember typing my poems, stories and college entrance essay on an IBM PC Junior computer.  We could barely afford it, but I remember him insisting that it was a good investment in our future.  Typing ensured a non-stop flow of college summer temp jobs and eventually paved a way for me in the fields of advertising, marketing and communications.  To this day I appreciate having the ability to type as fast as my thoughts flow.  I am encouraged by Dad's support of my writing and the occasional comment he bravely posts on my blogs.
     Ironically, it was my Mom, not my Dad, who encouraged me to learn how to drive in my teens.  Of course my father worried about my safety behind the wheel so he wanted no part in my driving education.  But I knew I would not always have access to public transportation so I felt it was my American right to pursue a driver's license.  I surprised him.
     "Guess what, Dad.  I have my driver's license," I said.
     "You what?  That's not possible," he said.
     Although my Mom had a driver's license, he was the designated family driver.  It was his role.  He was not accustomed to seeing women drive (well).
     "Sorry, but it's a done deal," I replied.
     I felt bad that I betrayed his wishes at the time, but knew in my heart it was the right thing for my future.  Although he must have been very upset that I did this at the time, he did not fight it.  Instead, he began to research the best makes of vehicles; their safety record, efficiency and performance ratings.  He believed in Honda as a reliable car brand.  After two years of dragging luggage through bus and subway terminals and perusing carpool ride on-campus boards, I was thrilled that Dad had helped me get a car loan for a new Honda Accord hatchback.  It served me well for the next ten years.
     I remember Dad ordering road maps from AAA for me.  He marked the routes with a bright yellow highlighter.  I had spent many years as the family road trip navigator on long car rides.  He taught me how to read a road map and how to visualize the north, south, east or west bound exit off ramps.
     "As long as you have and can find your location on a map, you will never be lost," Dad said.
     To this day, I prefer reading and marking up road maps rather than relying on an electronic navigator.  As a result, I never feel anxiety when driving someplace new.  If I miss an exit, I pull over, refer to my map and happily turn around.
     Happy Father's Day, Dad.  Thanks for all your guidance to date.  I still hear your safety warnings and advice, every step I take.
     What about you -- what imagery does the word Dad evoke for you?  Share a comment...

Tuesday, June 5, 2012

School Rallies for Emily

Dedicating a fun event to benefit a very ill child, has the power to make a dramatic difference in a 10-year-old's life. So is the decision for a family in need to accept help.
Gigiotti with Guarraia and Macione.
     On Friday, June 1st, Oswegatchie Elementary School students and staff performed at their annual talent show. There was a variety of very entertaining Disney-themed acts, including a combination of high energy and soulful singers, dancers, musicians, gymnasts, martial artists, hula hoopers, jump ropers and even a twirler. The teachers and staff also delighted students and the audience with their choreographed ensemble routine.
     The original plan was to donate all of the show's proceeds toward the Cactus Jack Foundation. But when members of the Oswegatchie school community learned that fifth grader Emily Feldman is currently fighting a rare health condition known as Moyamoya disease, they acted quickly.  Kim Saucier, one of the teachers involved with directing the talent show immediately proposed to Amie Guarraia, fellow teacher and director of the show, that they approach the school's principal about splitting the proceeds between the two worthy causes.
     According to the Mayfield Clinic for Brain and Spine, Moyamoya disease is a disorder caused by blocked arteries at the base of the brain, a life-threatening condition that requires Emily to undergo surgery that focuses on reducing risk of stroke and restoring blood flow to the brain. The name "moyamoya" means "puff of smoke" in Japanese and describes the appearance of the tangle of tiny vessels that form to compensate for the blockage. In the United States, the risk of developing Moyamoya is less than one in 100,000.
     When Oswegatchie Principal Nancy Macione announced that the event had raised a total of $1,311, Cactus Jack Foundation's representative Tim Gigliotti joined her and Amie Guarraia on stage to accept the check on behalf of the foundation and the Feldman family. He went on to surprise everyone by stating that Cactus Jack Foundation was not only donating their half of the proceeds to the Feldmans, but was matching it as well.
     “Emily is so happy to know that so many people care about her,” said Andrew Feldman, Emily's father.
     He said at first it was very difficult for Emily to let people know about her health condition. She didn't want to be labeled as different from everyone else. But it became very important for her teachers to learn about her health challenges and to work around it as a matter of precaution.
     The Feldmans also worried about the cost of the extensive medical treatments that Emily will be soon undergoing.
     “It's been a tough year,” said Feldman. “I was unemployed for 6 months and recently got a new job so I'm just getting back on my feet.”
     Although his wife is employed as a nurse, she will need to take a leave of absence to care for Emily post-operation and there will be a lot of travel involved between their home in Waterford and Boston Children's Hospital where Emily will be treated.
     “At first our family felt it was best to keep everything private, for Emily's sake,” said Feldman. “But the more we opened up to people that we are in need, the more I realized that we have to learn to accept support in order to triumph over adversity. It has made all the difference in the world for Emily and my family.”
     Feldman credits a physical therapist for pinpointing the true source of all of Emily's health issues. She was there at the recommendation of doctors after she complained of severe foot pain. After observing that one side of her body was significantly weaker than the other, the physical therapist urged that Emily receive some neurological testing. Over the past ten years, Feldman said Emily experienced some very concerning symptoms, from her inability to move one arm as an infant, to collapsing one day at preschool, to having vision, cognitive and hand eye motor skill issues in recent years. He said her primary care physician did not consider her symptoms serious because they were intermittent.
     In hindsight, he wished that more diagnostic tests were done much earlier, but it takes major symptoms and a life-threatening diagnosis for insurance to cover testing expenses.  As a former ballet dancer who is attuned to the body, Feldman said he "immediately knew something was askew" with Emily's health.  It is now considered very likely that all of Emily's symptoms over the years were probably related. Emily 's fainting spells may have been mild transient ischemic attacks (TIA) or mini-strokes due to partially blocked arteries in the brain. Eye glasses and orthotics for flat feet were not the answer to her problems.
     The Feldmans consider the many blessings in Emily's situation. They feel fortunate that she has had few symptoms despite her advanced Moyamoya condition. As they await Emily's surgery date on June 19, their main concern is to keep her hydrated, to keep her blood flow volume strong.
     “Youth is on her side. I am thankful that she is young, flexible and malleable,” said Feldman.
      It was important to Emily that she not miss any school. Their family was thankful that she could continue to have some semblance of normalcy after she was diagnosed. She will have the summer to recover and look forward to resuming normal activity one month after the surgery.
     “I have my faith and I appreciate the support of my family, friends and community,” said Feldman. “I feel like everything is going to be okay.”

If you live in the area, you can help Emily in her challenge to fight Moyamoya disease by going bowling with friends and family at Holiday Bowl (also known as Spare Time) in Groton this Friday, June 8th from 7:00-9:00pm. Tickets are 12.00 each - call 860 235 4654 or e-mail arwenjinn@aol.com or just pay at the door.

To view Emily's Facebook site about her journey to overcome Moyamoya Disease and find out how you can help if you are not able to attend the event, click here: http://www.facebook.com/emilymoyamoya

For more general info about Moyamoya Disease click here: http://www.mayfieldclinic.com/PE-Moyamoya.htm