School Rallies for Emily

Dedicating a fun event to benefit a very ill child, has the power to make a dramatic difference in a 10-year-old's life. So is the decision for a family in need to accept help.

Gigiotti with Guarraia and Macione.

     On Friday, June 1st, Oswegatchie Elementary School students and staff performed at their annual talent show. There was a variety of very entertaining Disney-themed acts, including a combination of high energy and soulful singers, dancers, musicians, gymnasts, martial artists, hula hoopers, jump ropers and even a twirler. The teachers and staff also delighted students and the audience with their choreographed ensemble routine.
     The original plan was to donate all of the show's proceeds toward the Cactus Jack Foundation. But when members of the Oswegatchie school community learned that fifth grader Emily Feldman is currently fighting a rare health condition known as Moyamoya disease, they acted quickly.  Kim Saucier, one of the teachers involved with directing the talent show immediately proposed to Amie Guarraia, fellow teacher and director of the show, that they approach the school's principal about splitting the proceeds between the two worthy causes.
     According to the Mayfield Clinic for Brain and Spine, Moyamoya disease is a disorder caused by blocked arteries at the base of the brain, a life-threatening condition that requires Emily to undergo surgery that focuses on reducing risk of stroke and restoring blood flow to the brain. The name "moyamoya" means "puff of smoke" in Japanese and describes the appearance of the tangle of tiny vessels that form to compensate for the blockage. In the United States, the risk of developing Moyamoya is less than one in 100,000.
     When Oswegatchie Principal Nancy Macione announced that the event had raised a total of $1,311, Cactus Jack Foundation's representative Tim Gigliotti joined her and Amie Guarraia on stage to accept the check on behalf of the foundation and the Feldman family. He went on to surprise everyone by stating that Cactus Jack Foundation was not only donating their half of the proceeds to the Feldmans, but was matching it as well.
     “Emily is so happy to know that so many people care about her,” said Andrew Feldman, Emily's father.
     He said at first it was very difficult for Emily to let people know about her health condition. She didn't want to be labeled as different from everyone else. But it became very important for her teachers to learn about her health challenges and to work around it as a matter of precaution.
     The Feldmans also worried about the cost of the extensive medical treatments that Emily will be soon undergoing.
     “It's been a tough year,” said Feldman. “I was unemployed for 6 months and recently got a new job so I'm just getting back on my feet.”
     Although his wife is employed as a nurse, she will need to take a leave of absence to care for Emily post-operation and there will be a lot of travel involved between their home in Waterford and Boston Children's Hospital where Emily will be treated.
     “At first our family felt it was best to keep everything private, for Emily's sake,” said Feldman. “But the more we opened up to people that we are in need, the more I realized that we have to learn to accept support in order to triumph over adversity. It has made all the difference in the world for Emily and my family.”
     Feldman credits a physical therapist for pinpointing the true source of all of Emily's health issues. She was there at the recommendation of doctors after she complained of severe foot pain. After observing that one side of her body was significantly weaker than the other, the physical therapist urged that Emily receive some neurological testing. Over the past ten years, Feldman said Emily experienced some very concerning symptoms, from her inability to move one arm as an infant, to collapsing one day at preschool, to having vision, cognitive and hand eye motor skill issues in recent years. He said her primary care physician did not consider her symptoms serious because they were intermittent.
     In hindsight, he wished that more diagnostic tests were done much earlier, but it takes major symptoms and a life-threatening diagnosis for insurance to cover testing expenses.  As a former ballet dancer who is attuned to the body, Feldman said he "immediately knew something was askew" with Emily's health.  It is now considered very likely that all of Emily's symptoms over the years were probably related. Emily 's fainting spells may have been mild transient ischemic attacks (TIA) or mini-strokes due to partially blocked arteries in the brain. Eye glasses and orthotics for flat feet were not the answer to her problems.

     The Feldmans consider the many blessings in Emily's situation. They feel fortunate that she has had few symptoms despite her advanced Moyamoya condition. As they await Emily's surgery date on June 19, their main concern is to keep her hydrated, to keep her blood flow volume strong.
     “Youth is on her side. I am thankful that she is young, flexible and malleable,” said Feldman.
      It was important to Emily that she not miss any school. Their family was thankful that she could continue to have some semblance of normalcy after she was diagnosed. She will have the summer to recover and look forward to resuming normal activity one month after the surgery.
     “I have my faith and I appreciate the support of my family, friends and community,” said Feldman. “I feel like everything is going to be okay.”

If you live in the area, you can help Emily in her challenge to fight Moyamoya disease by going bowling with friends and family at Holiday Bowl (also known as Spare Time) in Groton this Friday, June 8^th from 7:00-9:00pm. Tickets are 12.00 each - call 860 235 4654 or e-mail arwenjinn@aol.com or just pay at the door.

To view Emily's Facebook site about her journey to overcome Moyamoya Disease and find out how you can help if you are not able to attend the event, click here: http://www.facebook.com/emilymoyamoya

For more general info about Moyamoya Disease click here: http://www.mayfieldclinic.com/PE-Moyamoya.htm 

Unclutter...for Everyone's Good!

Temple Emanu-El hosted a community tag sale on May 20th.

A pile of junk in the house has the potential to accomplish a lot of good in a community.  Yet some people balk at the idea of setting up a yard sale.  They cringe at the thought of going through their stuff, hauling items outside and sitting out there for hours, only to possibly be insulted by nickel and dime offers.  The truth is that by tapping into a community tag sale, everyone seems to benefit; the takers, the givers and beyond.
     This past weekend Temple Emanu-El, of Waterford, held a successful community tag sale.  They were encouraged by their first tag sale last Fall.  A few weeks ago, they invited congregants and the general public to lease a spot as a tag sale vendor or donate items that were still in good working condition toward the tag sale.  Their vendor fee served as a donation to the Temple, a 501(c)3 non-profit organization which actively supports other important institutions in our area, including the Habitat for Humanity, the New London Soup Kitchen and the Interfaith Food Locker.  Congregants who were willing to donate all their proceeds to the Temple did not need to pay the vendor fee. 
     The beauty of the community tag sale was that there were many hands involved.  Each tag saler was responsible for setting up his or her own table in a designated section of the Temple's parking lot.  The tag saler cars showed up.  Items were quickly disembarked.  Cars were parked.  The Temple had reserved a limited number of tables.  Some tag sale item donors who could not commit to sitting at a tag sale table were given the opportunity to drop off their donations ahead of time.  Pick-ups were arranged for the elderly.  On the morning of the event, enough volunteers willingly sorted through the donation items and quickly arranged them into some order on the designated Temple tag sale tables.
     It was a lovely sun-kissed day of negotiations in the Temple's parking lot.  There was a steady stream of tag sale shoppers that arrived to check out advertised items from a 10-foot rowboat to home goods, sports equipment, children's items, books and more.  There were also wonderful refreshments available for purchase at the bake sale table.  Children had a thrilling shopping experience.  Their one dollar went a long way.
     The best part of the community tag sale was clean-up because there was no drudgery involved whatsoever.  Diane Johnson, who introduced herself as a representative of Waterford High School's Drama Club, asked a key question while perusing the tables.
     "What are you going to do with all the unsold items at the end of the tag sale?" she said.
     "Goodwill.  Why, are you looking for some items for a tag sale too?" one of the Temple's tag sale volunteers replied. 
     It was a matter of fact.  The Waterford Drama Club was in the midst of collecting items for their upcoming tag sale on June 2nd.  Last Fall, Temple Emanu-El also had the fortune of meeting a member of the Waterford Historical Society, who was in preparation for their tag sale the following week too.  It was destiny once again.
     "By the way," I said later, as a group of us helped load up her pick-up truck with the remaining tag sale items.  "Would you mind circulating some flyers for us at your tag sale?  Temple Emanu-El is hosting its annual Silent & Live Auction on June 2nd, the same day as your tag sale.  It's at 6:30pm that evening."
     "Sure," she said.  "I would be happy to hang some of the flyers up and hand some out."
     So partner up with members of your organization or even neighbors on your street.  Frequent tag saler shoppers like multi-family tag sales because it shortens the list of stops they have to make around town.  Donors and sellers will be blessed with open space in their homes.  Takers can enjoy their new affordable treasures.  Fundraisers like this help ensure that Temple Emanu-El will continue to exist and actively support social action causes in the area.
     Cost and labor efficient fundraisers like community tag sales benefit everyone.  You can start today.  If you live in the area, go through your stuff and contact Diane Johnson at the Waterford Drama Club about your tag sale donations or shop their tag sale on June 2nd.  Afterwards, (shameless plug alert), check out Temple Emanu-El's Silent and Live Auction at 6:30pm that evening! 

For out-of-town readers of this blog, I invite you to Shop for Some Good.  Help support Temple Emanu-El's online auction, which closes this Friday May 25th.  There's still time to bid on fantastic items... www.templeauction.com